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How Gluten Free Food Changed My Cerebral Palsy Teenager

Realizing that my daughter has a gluten allergy was both a relief and a challenge. Relief? Yes, was it part of her stomach pain all along? So how do I replace her favorite foods with gluten and where can I find gluten free food?

Diagnosed with cerebral palsy since birth, plus symptoms of ADHD and autism, Amber is a beautiful, bright, alert, 16-year-old girl with deep brown eyes that reach into the soul, a great sense of humor, and a giggle that touches your heart. She cannot speak our language or walk and relies heavily on the love and support of her mum and dad, support donors and teaching assistants to help her experience all that is possible in our world.

Her favorite band is Hi 5 and she likes to watch them every morning before breakfast and being gluten free she quietly watches Titanic while gently holding her favorite sock puppet “Mouseskee” before drifting off to sleep at night. She sleeps on a special mattress and has a sleep system made up of eight pillows placed deliberately around her body to support her back, front and legs. She needs to be turned at least five times during the night and let me tell you, this skill without waking her has definitely become an art over the years of practice.

She has had several major surgeries and is very limited in what she can do physically, but she thoroughly enjoys walking around in her wheelchair, exploring anything and everything around her with her tongue and hands. Stories and songs are a must at least once a day as well as cuddles and as for her “daddy” he just loves her when he rocks her you can see the excitement and anticipation in her eyes whenever she hears his voice and noise. it just fills the house with love and laughter. She is the youngest of four and is absolutely adored by her older brother and two sisters who are making their own way in the big wide world.

Since birth, Amber has always had problems sleeping, partly because sleep is a luxury in our household, but we knew that something was going on with her body, especially with her stomach, and a lot of it had to do with her condition and the medication she would be taking at the time , when. Since trying the gluten free diet, there has been a huge difference in her behavior, attitude and sleep. We now get a decent amount of sleep, she is much happier, more energetic and very alert, all made possible by the transition to a gluten free lifestyle.

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